World Prematurity Day 2014

Monday, November 17, 2014

You'll hear me say, I don't jump on the bandwagon to raise awareness for everything.

And while that doesn't mean we don't support various causes.

Because we do.

It does mean I can't wear purple or green or tweet or insta or blog or attend this or that event.  

I just can't.

Y'all we could very well be raising awareness every.single.month for one of Alli's diagnoses.  Trust me, every.single.month.  And that's just for her.  

Prematurity Awareness

Cerebral Palsy Awareness

IUGR (Intrauterine Growth Restriction) Awareness 

Sensory Processing Disorder Awareness

Dysphagia Awareness

Apraxia of Speech Awareness

You get my point?

And all those months spent raising awareness for diagnoses from our girl doesn't take into account other organizations we SO gladly support.....Pancreatic Cancer, St. Jude, Taylor Mckeen Shelton Foundation, and on and on.  

My point being, we don't need awareness days, months, special ribbons and colors to raise awareness and spread how stinkin' awesome our Alli is, her continued struggles, and some of the funding that is so greatly needed for cures and treatment for her and kiddos like her.  
But when it comes to today...

World Prematurity Day,

Well, it's different.  

And it deserves a day.  

Not just to raise awareness and celebrate the survivors.  

Not just to raise awareness for the 1 in 9 babies.  1 in 9, y'all, born far too soon.  

Not just to raise awareness for the 15 million born too soon.  The 1 million who will die THIS year.  The 2,700 babies who will die TODAY.  

Not just for that. 

But for where we need to be going.  For where we need to be.  Because all of the needs to dwindle.  

2,700 babies will die today.  

Many survivors will live a lifetime with chronic disease and disability and still face unknown complications later in life due to treatments given to them as newborns.  

Lives forever changed. Not just for a few months or a few years.



I'm on your bandwagon.

Our Alli Grace during her
first few days of life.

1 comment

  1. Yes!! To all of it!! And what an adorable little peanut she was!!


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