20 months/17 adjusted

Wednesday, September 19, 2012

On this very day 20 months ago and at about this very moment, I was taking my first shower in days. Being on complete hospital bed rest does not give way to very good personal hygiene. We had just made one of the biggest gut wrenching decisions in both of our lives, to deliver Alli via cesarean 13 weeks too soon and at an estimated weight of 12-13 ounces. I remember standing there letting the water run down my back second guessing myself, begging God to assure me I had undeniably heard him right, and fearing the path that was ahead. What an incredible journey that we are still walking out.
I'll save a complete update for next month or maybe even next week, depending on how the next few days go.  Alli has a big few days.  Tonight, she will be admitted to Children's for her sleep study. If you follow us, you know this is a sore subject. Then tomorrow after OT and Speech, she will have her developmental appointment.  We will probably have some news and/or a diagnosis o two after tomorrow’s appointment with Dr. Weinstein.  It’s been almost 6 months since we’ve seen her and it’s an appointment that can go really good or really bad.  I’m praying that Alli shows up and is able to show Dr. W what she has got and what she does not.  Sometimes, I feel we’re not getting anywhere.  I think the pictures below prove that we are, but there are moments in life where you just want to sprint instead of crawl.  Alli's developmental delays are areas where sprinting would always be nice.   
Going forward, I ask that you pray for her weight gain.  She’s obviously grown in length, something fierce, which is awesome.  Length is a great gage of lung maturation.  However, having hit a plateau for a few months, she now has lost weight.  This tells me that she is using too much energy by breathing, playing, and crawling. This is yet another reason we need to keep her oxygen, especially through cold and flu season.    
I haven’t shared the picture progression in a few months.  They alone speak for themselves the journey.
Happy 20 months Alli! You are so loved!

January 19, 2011
14.8 ounces

One Month~February 19, 2011
1 lb 9 ounces

Two Months~March 19, 2011
2 lbs 8 ounces

3 months~April 19, 2011
4 lbs 10.6 ounces

4 months~May 19, 2011
5 lbs 12.1 ounces

5 months~June 19, 2011
6 lbs 9 ounces

6 months~July 19, 2011
8 lbs 7.8 ounces

7 months~August 19, 2011
10 lbs 4 ounces

8 months~September 19, 2011

11 lbs 12 ounces

9 months~October 19, 2011
12 lbs 6 ounces

10 months~November 19, 2011
13 lbs 5 ounces

11 months-December 19, 2011
14 lbs 7 oz

12 months-January 19, 2012
16 lbs 1 oz

13 months-February 19, 2012
17 lbs 5 oz

14 months-March 19, 2012

19 lbs

15 months-April 19, 2012
20 lbs 2 ounces

16 months-May 19, 2012
21 lbs 2 ounces

17 months-June 19, 2012

22 lbs 5 oz

18 months-July 19, 2012

23 lbs

19 months-August 19, 2012

23 lbs

20 months-September 19, 2012

22 lbs 1 oz

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