All Smiles

Monday, July 11, 2011

The following pictures are all basically the same, but I have never been one to erase many pictures of my girls, but most especially I'm not able to erase or weed out any of this little miracle!!   Today Alli was so happy and I think it's because she heard her new and horrible and pretty significant diagnosis....a diagnosis I'm fired up about because it could have us on the other side of this journey sooner rather than later!!

Severe GERD, or Gastroesophageal reflux disease, is a condition in which the stomach contents (food or liquid) leak backwards from the stomach into the esophagus.  Basically, it's just reflux, albeit really, really bad reflux since for Alli it has been "silent reflux" and has gone basically undetectable.  

This is a HUGE diagnosis...It actually explains SO much!!   

It will help her breathing since chances are she has had microaspirations into her lungs, hands down will help in her bottle feedings when she is healed because it will no longer hurt, and will help with that sweet voice that is still so hoarse.  The main reason it has been so hard to detect is because like I said it's been silent.  Alli has spit up maybe 4 times.  The other factors like her hoarness and a red esophagus with slight edema were easily attributed to being on the ventilator for so long, which was obviously the case in the beginning, but now explains why these things have not gotten better with time.  The amazing thing about Alli is just like with her high blood CO2 levels, she's gotten use to it and compensates some how!  Just another example of how our little girl is suppose to be here!  We are super excited to have a diagnosis and one we can work with!!  

Alli will have surgery for the g-tube and hernia repair later this week.  Along with the g-tube she will be getting a Nissen fundoplication.  The Nissen is a surgical procedure to treat the reflux by taking the upper part of the stomach and wrapping it around the lower end of the esophagus and stitching it in place.  

Did I mention I'm going to medical school when this is all over!!  Haha!!  

Obviously, the diagnosis threw us a curve ball as far as her surgery is concerned and she will now have to be intubated (put on the ventilator) for the surgery.  BUT, John and I are actually at peace!  I've never truly had peace with the surgery until doesn't mean that we're both still not scared to death, but we've got a big God that we've already seen show up and a lot of nerve medication!!  We just have to sit back and watch and then wait for more days of these precious smiles and our little family finally being all together!!

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